Jayne Johnson, a 16-year-old from Kent, has been living with a rare bone-marrow disorder since birth. With her medication no longer working effectively, Johnson is preparing to undergo a stem-cell transplant, which she hopes will give her a new immune system. - PHOTO BY KARENSA - NOT FOR SALE
PHOTO BY KARENSA - NOT FOR SALE
Jayne Johnson, a 16-year-old from Kent, has been living with a rare bone-marrow disorder since birth. With her medication no longer working effectively, Johnson is preparing to undergo a stem-cell transplant, which she hopes will give her a new immune system.

Thanks to all who have been helping teen Jayne Johnson fight Severe Chronic Neutropenia Kostmann’s Syndrome


July 3, 2010 · 4:50 PM

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(Editor's note: This is a thank-you letter from the family of Kent teen Jayne Johnson. Johnson's story of coping with a deadly health condition - Severe Chronic Neutropenia Kostmann’s Syndrome - was our June 25 cover story. You can still read that story by going to the Kent Reporter Web site at www.kentreporter.com. Johnson will be undergoing a stem-cell transplant to hopefully cure her disorder. To help her financially, including contributing toward a wig she would like, made from her own hair, go to www.savejane.com, or donate to the Jayne Johnson Fund at any US Bank.)

With sincere hearts, we - Jayne Johnson and Family extend our gratitude for the time, talent, abilities, and contributions that have changed our lives for the better. It's absolute truth: Life is about meaningful relationships in community. Thank you for your prayers and support in an effort to Keep Hope Alive that Jayne will Thrive!

Special Thanks and Loud Appaulse to all - Seattle Children's Hospital, Seattle Cancer Care Alliance, Kent Multicare, Valley Medical Center Physical Therapy Department, Valley Dental Clinic, Kent School District, Hopelink, Puget Sound Blood Center, Severe Chronic Neutropenia International Registry, Pete Gross House, Starlight Foundation for Children, River of Life Fellowship, A Future and A Hope, Bonaci Fine Jewelers, The Citizens of the State of Washington and toThe United States Of America.

Thank you for your part in helping Jayne.

Joey Sexton

Kent

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